Not A Good Day

Today we had to visit a new community paediatrician for little J's development. I had prepared myself for the worst and unfortunately it was a good job I did.
After spending over a hour with little J she told us he is 3 months behind on all aspects of development. Which doesn't seem loads but when he is only 11 months its a big deal.

Little J likes to babble saying mama, dada and adda. The thing is he says these words but its not quite clear whether he actually knows what they mean and who is who. She told us he should be saying lots more than that and also stringing two or three sounds together.

Little J can clap hands but he can't wave bye bye which is something at this age he should be able to do. We do try and encourage it but he doesn't seem to understand. We have now made up a bye bye song for when anybody leaves to try and help him learn what to do. Its to the tune of the wheels on the bus.

He has made huge progress since Christmas with his physical development. He can roll and sit up unsupported. He knows to bring his knees up to crawl rather than just shuffling on his belly. I suppose because he has a bowed tibia we have not really encouraged standing. I remember when big J was a baby we used to prop him up on our knees and get him to walk across the floor while holding him. With little J we haven't done any of this and its probably not helped but we are just being cautious.

Little J has 'cafĂ© au lait' spots which are an indicator for NF1 and so is a bowed tibia so today that got brought up in the conversation again. They definitely cannot rule it out and she suggested that Little J has a MRI scan and cluster blood tests. Also a scan of his spine.

So yet again we are waiting for more hospital appointments. All this to and fro from hospitals is just so exhausting. Poor little J must get fed up but he never shows it he always has a smile on his face.

20 comments

  1. Sorry to hear this. I hope it all gets better for you soon :)

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  2. NF 1 is a worry as the outcomes can be so varied. My hubby has it and pretty sure my first son has but no one really seems bothered as long as no severe symptoms. Hope u get ur answers x

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    1. Sorry to hear your husband has it. Just wondering how old your son is?

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  3. he looks such a happy little boy and thats wht matters hun, hopefully nf1 can be ruled out after tests and he catches up , little ones at that age can be seem to be behind then all of a sdden they are on the floor crawling one minute then POW,,, they are running round the house with you following him not knowing how to stop him, fingers crossed hun x

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    1. Thanks Lisa, he has come on loads over the last few months.

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  4. Aww no :( Hopefully NFL can be ruled out xxx

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  5. Hope it all goes well. Try not to worry too much - my little boy was behind on speech and now he doesn't stop talking!

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    1. I know all kids develop at different stages, x

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  6. Oh bless him :( Looks a happy little man! Hope you get some answers you need soon x

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  7. Sorry to hear about this and all of the back and forth from hospital. Hope things get sorted out. Beautiful picture #GoldenOldies

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  8. Absolutely beautiful photo of J, he looks so happy even with all he is going through. #GoldenOldies
    popping over from http://havingababyandlivingathome.co.uk

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  9. oh gosh - what a worry! Hope there has been more progress since you wrote this post. Lovely photo #goldenoldies

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Thanks for your comments. I love reading them :)